Trustee vacancies at Immunodeficiency UK

We are seeking at least two independent senior volunteers from March 2022.

Immunodeficiency UK is a small but spirited charity that supports individuals and families affected by a primary and secondary immunodeficiencies in the UK.

We are looking for experienced members of the public to join our Board of Trustees who help steer our growth over the coming years and who will ensure adequate governance oversight of our much-needed services.

We are particularly keen to recruit people who have one or more of the following skills:

  • Experience of living with or caring for a person with an immunodeficiency.
  • Expertise in Marketing, Communications, Fundraising or PR.
  • Charity finance, charity accounting (for treasurer role).

Board meetings are held online each month and take place on a Monday evening starting at 5pm for approximately one hour.

To find out more about joining the Board, please contact the chief executive, Dr Susan Walsh at for an informal chat.

To apply for one of at least two roles (general trustee or treasurer), please write to the Chair of Trustees, Dr Matthew Buckland c/o with the subject line Trustee Application. Please attach a letter outlining your interest and connection to our cause and the skills/experience you would bring to the Board, along with your CV.

Please apply by 4th January 2022.

Interviews will be arranged with trustees during January and announced in early February.

An induction will be planned, and new trustees will be appointed from mid-March.

About Immunodeficiency UK

Immunodeficiency UK, launched on 1st April 2021, is a charity supporting individuals and families affected by a primary and secondary immunodeficiency in the UK.

Our aims are to help ensure that those affected have the knowledge needed to manage their condition effectively and to ensure that their health needs are understood and addressed by those involved in policy and delivery of healthcare.

The charity employs one full-time member of staff. The charity's day-to-day operations are funded entirely by voluntary donations and grants.

Immunodeficiency UK's registered charity number is 1193166.

Role purpose

The Board of Trustees have six main responsibilities:

1. To ensure the charity is carrying out its purposes for the public benefit
2. To comply with the charity's governing document and the law
3. To act in the charity's best interests
4. To manage the charity's resources responsibly
5. To act with reasonable care and skill
6. To ensure the charity is accountable

Our history

For the period from 2013 to 31st March 2021 we were known as Primary Immunodeficiency UK and managed as part of the charity Genetic Disorders UK. In April 2021, we separated with three founding trustees and one employee who transferred (TUPE) to form Immunodeficiency UK.

Our mission

Our mission is to support the advancement of health and the relief of people affected by primary and secondary immunodeficiency and their families and people responsible for their welfare, including in particular:

(a) by providing assistance, advice or guidance in relation to managing their condition and improving the diagnosis of these conditions, their treatment and the quality of life of those affected;

(b) promoting awareness and understanding of primary and secondary immunodeficiency within the general public and medical profession in order to better understand these conditions and their impact; and

(c) providing a helpline service, events and practical help and advice.

(d) To encourage and support research into the causes, treatments, prevention and cures for primary and secondary immunodeficiency, and to publish the useful results of that research.

Our Values

Our values in working for people affected by immunodeficiency are:

Commitment - We are committed to caring for, supporting and helping people affected by immunodeficiency.

Collaboration - We believe in working with others to achieve our aims.

Achievement - We will excel in all that we do to best serve the needs of people affected by immunodeficiency.

Respect - We value and respect the opinion of others and believe that people with immunodeficiency have a right to good healthcare without discrimination.
Inclusiveness - We will be responsive to the needs of families affected by immunodeficiency wherever they live in the UK.

Posted 14th November 2021