Carolyn Grundy

I was diagnosed with CVID almost 6 years ago, after several years of illness. My GP had never heard of the condition, despite me telling him (and everyone else in the medical profession that I was referred to) that there was something wrong with my immune system. I have a background in biomedical research and, since diagnosis, have tried very hard to spread the word among any medical professionals I come across. I hope that being on the panel will give me a greater chance of doing this. I live in North Wales with my (very supportive) husband and have 2 “children” and 3 grandchildren. I retired early partly due to moving across the country 15 years ago, but also because I was ill so frequently, I didn’t feel able to look for a job. Following a dramatic improvement since I started immunoglobulin replacement therapy, I have done my best to show people that I am not ”ill” and that I am just as capable as the next person of living a normal life. I go to the gym, play in the local amateur orchestra, paint and travel the world. I am also very interested in learning about any research currently in progress into immunodeficiencies. My ambition is to put my skills to good use as a member of the Patient Representative Panel.