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I live in Manchester with my husband Steve and our three sons.
My youngest son, Xander, was diagnosed at 18 months old with X-linked Agammaglobulinemia (XLA). Xander's condition was caused by a gene mutation, and came as a complete shock. With the help of the now dissolved, PiA, I gained help and support from many people who I now consider my friends and keep in touch with regularly. PID UK now fill the void that the PiA left and I would like to share with people my wealth of knowledge of immunodeficiencies, that I have gained over the years and to support people and be that friendly face they can turn to. I have always wanted to, not only help those newly diagnosed, especially the parents/family of children newly diagnosed, but to help educate people regarding the conditions, from hospital doctors, to GP's and even schools. I am thrilled to be part of a wonderful organisation.