Affiliations and links
Immunodeficiency UK is the national UK representative member of the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and a member of the following organisations:
Benefits and Works – Guides you can trust
Specialised Healthcare Alliance
Prescription Charges Coalition
Northern Ireland Rare Disease Partnership (NIRDP)
Irish Platform for Patients’ Organisations, Science and Industry (IPPOSI)
The FSI | Leading provider of small charity training
Membership of panels and committees
Immunodeficiency UK has representation on:
- Public Health England SCID Screening Evaluation Oversight group.
- National Plasma Product Expert Advisory Group Committee, National Health Services Scotland
Immunodeficiency UK is a National Institute for Health Research (NIHR) non-commercial Partner. This means the studies that we fund may be eligible to access NIHR Clinical Research Network (CRN) support.
To support patient advocacy and care we have regular involvement with consultations set up by NICE, NHS England and other health agencies.
