Affiliations and links

Immunodeficiency UK is the national UK representative member of the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and a member of the following organisations:

Benefits and Works - Guides you can trust

Disability Law Service

Genetic Alliance UK  

Rare Disease UK

Specialised Healthcare Alliance

Prescription Charges Coalition

Northern Ireland Rare Disease Partnership (NIRDP)

Irish Platform for Patients' Organisations, Science and Industry (IPPOSI)

Membership of panels and committees

Immunodeficiency UK has representation on:

• Public Health England SCID Screening Evaluation Oversight group and on the Patient Information, Informed Choice and Training Group. 
• National Plasma Product Expert Advisory Group Committee, National Health Services Scotland

Immunodeficiency UK is a National Institute for Health Research (NIHR) non-commercial Partner. This means the studies that we fund may be eligible to access NIHR Clinical Research Network (CRN) support.

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