Parent and children stories

Parents often want to talk to others to share their experiences about their affected children. We hope these inspirational stories will help other parents.

• Nate's story.  Nate has X-linked agammaglobulinemia (XLA).

• Samuel's story.  Sam has never had a full diagnosis of his PID but has now had a bone marrow transplant to help cure his condition.

• Herbie and Lily's story about their NEMO syndrome.

• Henry's story about his Hyper IgM CD40 ligand deficiency.

• Benjy's story about his XLA.

• Isaac's story. Isaac has complement 2 deficiency.

If you would like to share the story of your child and their PID journey please contact us.

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