Parent and children stories

Parents often want to talk to others to share their experiences about their affected children. We hope these inspirational stories will help other parents.

  • Nate's story.  Nate has X-linked agammaglobulinemia (XLA).
  • Samuel's story.  Sam has never had a full diagnosis of his PID but has now had a bone marrow transplant to help cure his condition.

If you would like to share the story of your child and their PID journey please contact us.