NEMO (nuclear factor-kappa B essential modulator) deficiency

This information explains the rare immune condition called NEMO (nuclear factor-kappa B essential modulator) deficiency syndrome. The content has been produced jointly between Immunodeficiency UK, Great Ormond Street Hospital (GOSH) and the Great North Children’s Hospital and in association with the XLP Research Trust.

The information has been reviewed by our Patient Representative Panel and by families affected by NEMO. It has been endorsed by our Medical Panel.

February 2019