NEMO (nuclear factor-kappa B essential modulator) deficiency
This information explains the rare immune condition called NEMO (nuclear factor-kappa B essential modulator) deficiency syndrome. The content has been produced jointly between Immunodeficiency UK, Great Ormond
Street Hospital (GOSH) and the Great North Children’s Hospital and in
association with the XLP Research Trust.
The information has been
reviewed by our Patient Representative Panel and by families
affected by NEMO. It has been endorsed by our Medical Panel.
February 2019