International PID support groups

The International Patient Organisation for Primary Immunodeficiencies (IPOPI) is an association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments.

A list of international primary immunodeficiency support groups can be found on the IPOPI website.

PID UK became the UK national member organisation of IPOPI in 2014.

Jeffrey Modell Foundation

www.info4pi.org

The Jeffrey Modell Foundation is dedicated to early diagnosis, meaningful treatments and, ultimately, cures through research; physician education, public awareness, advocacy, patient support and newborn screening. It supports expert immunology centres around the world.