Monthly Archives: March 2021

My name is Danielle, but everyone calls me Dani. I am 45 years old and was diagnosed with common variable immune deficiency (CVID) in early 2018 and then granulomatous-lymphocytic interstitial lung disease (GLILD) in August 2019. "I found the exhaustion and the pain overwhelming. Problems I thought I had dealt

Hi, I’m Jen. I was diagnosed with hypogammaglobulinemia when I was 15. "I work full time as a property consultant and trying to stay healthy and avoid getting ill while living and working in London is not always easy." I became ill with pneumonia and a

My name is Elisabeth and I have a mild form of PID. I have no mannose-binding lectin, low immunoglobulin M but normal immunoglobulin G levels. "PID UK has been fantastic in terms of the clear and concise information it has sent out to the PID community during the pandemic. Having

My name is Alison and I have IgA deficiency and DiGeorge syndrome (22q 11 deletion). "The doctor who took my blood sample was confident that the results would come back negative. The results came back positive. I cried, laughed and hugged my family." During a medical

My name is Ellie Jayne Taylor and I have mannose-binding lectin (MBL) deficiency. I wasn’t aware of the term ‘immune deficiency’ until I was diagnosed, in November 2012, while battling sepsis. "Yes, it’s important to know what condition you have but it’s also important to remember you are not your

Hi, we are twin sisters Jodi and Jessi Ecclestone. We both have common variable immune deficiency (CVID) and lung disease (bronchietasis)‚ plus the associated problems caused by recurrent infections, which other people who have CVID will know all about.. "PID UK has supported us in coping with CVID but has

My name is Claire and I have common variable immune deficiency (CVID). "Some days I'm exhausted and I try to balance things, but it's hard. I have found a lot of people don't understand or know much about CVID; more awareness is necessary." I had various

My name is Simon Gach and I have XLA (X-linked agammaglobulinemia). The condition means that my pre-B cells do not mature, so I have no natural resistance to certain bacterial infections, especially pneumonia-type conditions. "My advice for anyone starting their journey would be to ask questions and become knowledgeable about

My name is Danielle and I am 30 years old. I was diagnosed with hypogammaglobulinemia in 2017. "After years of no explanation for my ill health, I was so happy to finally have an answer. A lot of the time when you are ill, you wonder if it is all

My name is Danny Boxer and I was diagnosed with common variable immune deficiency (CVID) in 1987. "If you are waiting for your vaccine, follow the advice given to stay safe and don't be too proud to ask for help. Take your vitamin D and get obsessive about hand washing!"