The Specialised Healthcare Alliance (SHCA) has published the report ‘Rare diseases, common inequalities: bringing rare diseases into the health inequalities agenda’ The report contains 8 key recommendations to support equitable access to services for people with rare diseases, in comparison to those with more common conditions, ensuring that everyone has the same opportunity to live
Researchers at Leeds Beckett University are inviting people aged 18+ diagnosed with a Primary or Secondary Antibody Deficiency (PAD/SAD) to participate in a remote interview. The interview, which will take approximately 45 minutes will explore your experience of living with PAD/SAD and how the condition impacts your quality of life. Researchers are looking to speak
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