General

Is there a link between PID and dementia?

There is no evidence of a link, either protective or causative, of PID with dementia. We are living longer and dementia is usually a condition of old age and the number of people affected is on the increase in the general population.

Is there a link between PID and dementia?2021-04-06T10:43:00+00:00

I have a PID. Should I tell my dentist and does this mean I should expect to receive antibiotics before treatment?

Your dentist should be made aware and can then take appropriate advice from your medical team if required.  For example, patients with complement deficiency on prophylactic antibiotics may well require an additional regimen pre-dental treatment, but other PIDs may not.

I have a PID. Should I tell my dentist and does this mean I should expect to receive antibiotics before treatment?2021-04-06T10:39:04+00:00

I have a PID. Is it OK to have Botox injections?

Botox parties where you share needles are definitely NOT recommended. If you want to have Botox then ask your health team about this and do your research to find a reputable clinic.

I have a PID. Is it OK to have Botox injections?2021-04-06T10:32:43+00:00

I have a PID and considering cosmetic surgery. What’s your advice?

In general people with PID can have cosmetic surgery but it’s best to ask your doctor what he advises. As with all operations there’s a risk with infection and your doctor will know what threat these risks are for your condition. Don’t forget to thoroughly research your cosmetic surgeon and their track record.

I have a PID and considering cosmetic surgery. What’s your advice?2021-04-06T10:31:44+00:00

Is there any problem with having a pedicure or manicure when you have a PID?

No. Overall the risks of getting an infection through manicure and pedicure are the same as for healthy people. Choose a place that is reputable and has high standards of hygiene.  We recommend that people with PID do not have ‘fish pedicures’ as the tanks used are full of bacteria and fungi that could cause

Is there any problem with having a pedicure or manicure when you have a PID?2021-04-06T10:31:07+00:00

My child is at university and in the last few months have been too ill to complete exams and coursework. What can we do?

All universities will have an extenuating circumstances policy that your son or daughter should look up. This policy is there to assist students who may encounter significant personal difficulties outside their control such as ill health. Many universities can put into place adjustments to support study and assessment.  It is also worth your son or

My child is at university and in the last few months have been too ill to complete exams and coursework. What can we do?2023-04-18T14:55:55+00:00

I’m getting a lot of urinary infections and wondered if this could be because of my low IgA and low mannose binding lectin (MBL)?

You will need to discuss with your immunologist to see if they think there is a specific reason you are getting urinary infections but in general the immune system does not play a role in protecting the lower urinary tract as this is really dependent on good bladder hygiene (voiding often and not holding urine)

I’m getting a lot of urinary infections and wondered if this could be because of my low IgA and low mannose binding lectin (MBL)?2021-04-01T16:11:52+00:00

On a trip to see my GP recently they told me I was a very complicated patient. Do you have anything I could give them to help them help me?

We have the IPOPI booklet “A Guide for GPs” which you can download from our website or you can request a copy by emailing us at hello@immunodeficiencyuk.org.  You can then give this to your GP to provide them with more information. 

On a trip to see my GP recently they told me I was a very complicated patient. Do you have anything I could give them to help them help me?2023-04-18T15:00:14+00:00

When I’m having a ‘poorly time I get chest pain which has been partly diagnosed as costochondritis. I also get what I imagine is lung pain but it is mainly felt in my back – why?

Costochondritis causes pain in the rib cartilages at the front of your chest. These can become inflamed and sore, sometimes with viral infection. Lung pain can occur anywhere in your chest, front or back. Often this pain is worse when you cough or take a deep breath. It is a sign that the lining of

When I’m having a ‘poorly time I get chest pain which has been partly diagnosed as costochondritis. I also get what I imagine is lung pain but it is mainly felt in my back – why?2021-04-01T16:04:13+00:00

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