Drew Tyne, patient representative for London
I was diagnosed with CVID back in 1996 after becoming critically ill and straight away was put onto immunoglobulin replacement therapy. Since then, I have been to university lived in two different cities changed immunoglobulin products more times than I can remember as well as infusion methods leading me to now; doing my own infusions at home via the subcutaneous method, and I love it. Via the support from my Immunology team, at the Royal Free Hospital, and my amazing wife, I work full time as a Graphic Designer, as well as doing activities like running, rollerblading and American football. I’m excited at helping Immunodeficiency UK, as I know the struggles a patient can go through, so by using my experiences and knowledge I want to help patients take control over their condition so they don’t feel limited by it. I just want to let you know, that this diagnosis isn’t the end of the world. It is the beginning of an adventure to do the things you couldn’t have done before. Keep well.