Please remember that your child’s primary immunodeficiency (PID) is not your fault. You did not cause or will this upon your child.
Having a PID does not mean the end of their world or yours.
Things might feel unfamiliar until you find a way to speak about and understand what they have, but your child is still who they are and who they have always been.
The jumble of letters and numbers, which form your child’s diagnosis, will eventually stop feeling as overwhelming as it does now.
There is so much help and information out there, much of which you will find on this site or be directed to from here.
From the best therapies to help you and your child, to the systems and funding available, we will point you in the right direction.
You might not want to know it all now. We will be here when you are ready to find out more.
You are not on your own.