PID UK newsletter survey 2020

The aim of the survey was to explore the value of the newsletter to the community, preferences on content, and the frequency and mode of delivery of the newsletter.  The survey ran from 6th to 30th October 2020 and participation was by an email invitation to members.

Who responded?

102 people responded to the survey. Of these 92 were from people either directly or indirectly affected by PID.  A broad range of age groups took part.

96% of respondents came from the four home nations with remaining responses from members living outside of the UK.  For a detailed breakdown of the demographics please see the Appendix.

Key findings

  • 85% of respondents found the newsletter informative or extremely informative.
  • 92% of respondents valued updates on the latest medical treatments and advances on PID.
  • 64% of respondents valued the sharing of stories & experiences from those living with PID.
  • 63% of respondents indicated the newsletter made them feel part of a community.
  • 61% of respondents valued being informed about PID UK's activities and how PID UK raises awareness of PID.
  • 91% of respondents were happy to receive newsletters by email.  
  • 75% of respondents preferred monthly rather than quarterly newsletters.

Full analysis of the results can be found here.

Thank you to everyone who took part in the survey.

Posted November 2020.