Latest news
Unlocking patient access to innovative rare disease medicines, why ‘rare’ still means waiting for too many patients
Why ‘rare’ still means waiting for too many patients Living with a rare disease such as a primary or secondary immunodeficiency brings challenges that go far beyond
BSI-CIPN report reveals shortages and wide variations in immunology and allergy staffing across the UK
A new report by British Society for Immunology Clinical Immunology Professional Network’s (BSI-CIPN) has found serious issues in the way that immunology and allergy services
Update on our 2023 patient experience survey
We are delighted to launch a new report, Misunderstood and Underserved, summarising the key findings of a 2023 patient experience survey and key
New report exposes unequal access to COVID-19 treatments for high-risk patients
A new report: *Beyond the Pandemic: Strengthening Access to COVID-19 Therapies for High-Risk Patients in England, has revealed significant regional inequalities in
New report warns of crisis in care for immunodeficiency patients
A new report by The Royal College of Pathologists has found that three quarters of UK immunology services do not have enough
Disparities in timely access to COVID-19 therapeutics
Here we summarise the key findings and recommendations from the UK COVID-19 inquiry and the report ‘Beyond the pandemic: Addressing disparities in
Immunodeficiency UK Champions Domestic Plasma Donation at Parliamentary Reception
On Wednesday, March 20th, Immunodeficiency UK played a key role in a momentous event at the House of Commons – The Plasma
Changes in access to free lateral flow tests in England
From 6 November 2023, eligible patients will be able to pick up free rapid lateral flow tests from a local pharmacy.
Report on inequalities in healthcare for people with rare diseases
The Specialised Healthcare Alliance (SHCA) has published the report ‘Rare diseases, common inequalities: bringing rare diseases into the health inequalities agenda’ The
Volunteers still needed for research study
Researchers at Leeds Beckett University are inviting people aged 18+ diagnosed with a Primary or Secondary Antibody Deficiency (PAD/SAD) to participate in
