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So far Fay ~Fagon has created 18 blog entries.

BSI-CIPN report reveals shortages and wide variations in immunology and allergy staffing across the UK

A new report by British Society for Immunology Clinical Immunology Professional Network’s (BSI-CIPN) has found serious issues in the way that immunology and allergy services are staffed, leaving primary and secondary immunodeficiency patients at serious risk.  The BSI-CIPN represents over 220 professionals in the clinical immunology space including doctors, healthcare scientists, pharmacists and specialist nurses.    The report is endorsed by The Association of

BSI-CIPN report reveals shortages and wide variations in immunology and allergy staffing across the UK2025-12-04T10:24:14+00:00

Update on our 2023 patient experience survey

We are delighted to launch a new report, Misunderstood and Underserved, summarising the key findings of a 2023 patient experience survey and key recommendations for policymakers. You may recall this project has been developed in collaboration between Immunodeficiency UK and Takeda UK Limited. Both Immunodeficiency UK and Takeda UK Limited have provided input into the development

Update on our 2023 patient experience survey2025-10-21T08:25:47+00:00

New report exposes unequal access to COVID-19 treatments for high-risk patients

A new report: *Beyond the Pandemic: Strengthening Access to COVID-19 Therapies for High-Risk Patients in England, has revealed significant regional inequalities in access to life-saving COVID-19 treatments for clinically vulnerable people. Immunodeficiency UK contributed to the report.  This report expands on the topics covered in their previous report: Beyond the pandemic: Addressing disparities in timely

New report exposes unequal access to COVID-19 treatments for high-risk patients2025-10-21T09:02:39+00:00

New report warns of crisis in care for immunodeficiency patients

A new report by The Royal College of Pathologists has found that three quarters of UK immunology services do not have enough staff to meet current clinical demand — leaving primary and secondary immunodeficiency patients at serious risk of delayed diagnoses, disrupted treatment, and preventable harm. The Consultant Immunology Workforce Report highlights a growing crisis

New report warns of crisis in care for immunodeficiency patients2025-09-25T10:44:07+00:00

Disparities in timely access to COVID-19 therapeutics

Here we summarise the key findings and recommendations from the UK COVID-19 inquiry and the report ‘Beyond the pandemic: Addressing disparities in timely access to COVID-19 therapeutics Policy Report (July 2025)*.   *This report was commissioned and wholly funded by Pfizer but independently authored by Kintiga. It has been reviewed by Pfizer to ensure ABPI Code

Disparities in timely access to COVID-19 therapeutics2025-08-26T08:31:01+00:00

How Harry and his friends made a difference

Eight-year-old Harry, who lives with a primary immunodeficiency, recently led a touching fundraising effort with his classmates that reminds us how compassion and generosity can start at any age. Over the past few months, Harry and his school friends have been busy crafting colourful loom band bracelets. They decided to sell them to other

How Harry and his friends made a difference2025-06-19T13:47:09+00:00

Sophie’s Worthing half marathon success

When Sophie Hughes laced up her running shoes for the Worthing Half Marathon on May 4th, 2025, she carried more than just her training and determination with her. She ran with the love and hope she has for her two sons, Hayden and Jake, who both live with the primary immunodeficiency mannose-binding lectin deficiency.

Sophie’s Worthing half marathon success2025-05-29T13:20:50+00:00

Blanche completes the RomaOstia Half Marathon

In March 2025, Blanche ran the RomaOstia Half Marathon to raise vital funds for Immunodeficiency UK and LaSpes ONLUS, who support research into rare genetic diseases like Wiskott-Aldrich syndrome (WAS).   Blanche’s close friends lost their son to WAS, and she ran in his memory.  Twenty-five percent of the total funds raised went to Immunodeficiency

Blanche completes the RomaOstia Half Marathon2025-03-11T12:17:54+00:00

Katy’s Brighton Marathon Challenge

For Katy Rogers, running a marathon wasn’t just about personal achievement—it was about honouring her sister Emma and raising awareness for those living with immunodeficiency.  Emma was diagnosed with Common Variable Immune Deficiency (CVID) at 16 after years of recurrent infections and serious illness.   Katy has witnessed firsthand the impact of CVID on her

Katy’s Brighton Marathon Challenge2025-03-06T12:50:44+00:00

Lyndsey and Harry’s musical fundraiser

Eight-year-old Harry Chambers from Northern Ireland lives with XLA (X-linked agammaglobulinemia), a condition requiring regular infusion treatments every two weeks. Despite this challenge, Harry continues to thrive thanks to the dedicated support of the Immunology Department at Belfast's Royal Victoria Hospital, where he receives his essential care. Harry's mother, Lyndsey Chambers, Head of Music

Lyndsey and Harry’s musical fundraiser2025-01-21T09:57:38+00:00
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