Here we summarise the key findings and recommendations from the UK COVID-19 inquiry and the report ‘Beyond the pandemic: Addressing disparities in timely access to COVID-19 therapeutics Policy Report (July 2025)*. *This report was commissioned and wholly funded by Pfizer but independently authored by Kintiga. It has been reviewed by Pfizer to ensure ABPI Code
Eight-year-old Harry, who lives with a primary immunodeficiency, recently led a touching fundraising effort with his classmates that reminds us how compassion and generosity can start at any age. Over the past few months, Harry and his school friends have been busy crafting colourful loom band bracelets. They decided to sell them to other
When Sophie Hughes laced up her running shoes for the Worthing Half Marathon on May 4th, 2025, she carried more than just her training and determination with her. She ran with the love and hope she has for her two sons, Hayden and Jake, who both live with the primary immunodeficiency mannose-binding lectin deficiency.
In March 2025, Blanche ran the RomaOstia Half Marathon to raise vital funds for Immunodeficiency UK and LaSpes ONLUS, who support research into rare genetic diseases like Wiskott-Aldrich syndrome (WAS). Blanche’s close friends lost their son to WAS, and she ran in his memory. Twenty-five percent of the total funds raised went to Immunodeficiency
For Katy Rogers, running a marathon wasn’t just about personal achievement—it was about honouring her sister Emma and raising awareness for those living with immunodeficiency. Emma was diagnosed with Common Variable Immune Deficiency (CVID) at 16 after years of recurrent infections and serious illness. Katy has witnessed firsthand the impact of CVID on her
Eight-year-old Harry Chambers from Northern Ireland lives with XLA (X-linked agammaglobulinemia), a condition requiring regular infusion treatments every two weeks. Despite this challenge, Harry continues to thrive thanks to the dedicated support of the Immunology Department at Belfast's Royal Victoria Hospital, where he receives his essential care. Harry's mother, Lyndsey Chambers, Head of Music
Pictured: Jim Carvell (on the left) and Michael Ingleston When Jim Carvell began planning his 80th birthday celebration, he knew he wanted it to be more than just a personal milestone. As a long-time supporter of Immunodeficiency UK, Jim saw an opportunity to combine his special day with supporting a cause close
We’re proud to shine a spotlight on Sophie and Micky’s incredible fundraising journey. Sophie and Micky took on an inspiring challenge, walking and hiking a staggering 870 miles of the Wales Coast Path—from rugged cliffs to stunning beaches, through bustling cities and quiet towns—all to raise awareness and vital funds for Immunodeficiency UK. Jasper
The Immunodeficiency UK community is overjoyed to celebrate the incredible fundraising efforts of our dear supporter, Shauna. Driven by her love and concern for her nephew, Oliver, Shauna recently completed an exhilarating skydive that has raised an astounding £1,000 for our charity. Oliver has been courageously navigating the challenges of a rare genetic condition
Running for a Cause Close to Home Katie has an immunodeficiency, so she knew she wanted to do something to support others facing similar challenges. She rallied her husband Andy and sister Jackie, and together they took on an incredible feat - the London Landmarks Half Marathon. Despite the gruelling training and 13.1-mile race
IMPORTANT NOTE: The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor
if you or your child has any immunodeficiency symptoms or concerns. © 2025 Immunodeficiency UK. All rights reserved | Registered charity number 1193166.
