Fundraising stories

Steven took on the UK’s toughest 10km obstacle course

On April 26th, 2025, Steven took on the formidable Born Survivor challenge,the UK's toughest 10km obstacle course, to honour the memory of his beloved father, Dave, who passed away on June 15th, 2024. What began as a personal tribute transformed into an incredible fundraising success for Immunodeficiency UK. Born Survivor is not your

Steven took on the UK’s toughest 10km obstacle course2026-05-07T11:31:28+00:00

Diane & Rachel take on London Landmarks Half Marathon 2026

Diane and her daughter Rachel took on the London Landmarks Half Marathon in support of Immunodeficiency UK, raising over £1,900. The 13-mile route passes iconic sights like Big Ben, St Paul's Cathedral and the Tower of London.  Like many in the immunodeficiency community, their condition brings frequent illness, slow recovery, and lasting damage from repeated

Diane & Rachel take on London Landmarks Half Marathon 20262026-04-23T09:00:16+00:00

How Harry and his friends made a difference

Eight-year-old Harry, who lives with a primary immunodeficiency, recently led a touching fundraising effort with his classmates that reminds us how compassion and generosity can start at any age. Over the past few months, Harry and his school friends have been busy crafting colourful loom band bracelets. They decided to sell them to other

How Harry and his friends made a difference2025-06-19T13:47:09+00:00

Sophie’s Worthing half marathon success

When Sophie Hughes laced up her running shoes for the Worthing Half Marathon on May 4th, 2025, she carried more than just her training and determination with her. She ran with the love and hope she has for her two sons, Hayden and Jake, who both live with the primary immunodeficiency mannose-binding lectin deficiency.

Sophie’s Worthing half marathon success2025-05-29T13:20:50+00:00

Blanche completes the RomaOstia Half Marathon

In March 2025, Blanche ran the RomaOstia Half Marathon to raise vital funds for Immunodeficiency UK and LaSpes ONLUS, who support research into rare genetic diseases like Wiskott-Aldrich syndrome (WAS).   Blanche’s close friends lost their son to WAS, and she ran in his memory.  Twenty-five percent of the total funds raised went to Immunodeficiency

Blanche completes the RomaOstia Half Marathon2025-03-11T12:17:54+00:00

Katy’s Brighton Marathon Challenge

For Katy Rogers, running a marathon wasn’t just about personal achievement—it was about honouring her sister Emma and raising awareness for those living with immunodeficiency.  Emma was diagnosed with Common Variable Immune Deficiency (CVID) at 16 after years of recurrent infections and serious illness.   Katy has witnessed firsthand the impact of CVID on her

Katy’s Brighton Marathon Challenge2025-03-06T12:50:44+00:00

Lyndsey and Harry’s musical fundraiser

Eight-year-old Harry Chambers from Northern Ireland lives with XLA (X-linked agammaglobulinemia), a condition requiring regular infusion treatments every two weeks. Despite this challenge, Harry continues to thrive thanks to the dedicated support of the Immunology Department at Belfast's Royal Victoria Hospital, where he receives his essential care. Harry's mother, Lyndsey Chambers, Head of Music

Lyndsey and Harry’s musical fundraiser2025-01-21T09:57:38+00:00
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