Research into primary immune deficiency is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care.

With this in mind, we invited researchers and clinicians to give updates on the latest advances for people affected by primary immunodeficiency to celebrate Rare Disease Day 2017 in a special edition of our newsletter.

Patients play such a crucial role in research so we have a guide to encourage you to ask about research and a patient perspective of being involved in a research project.

Topics covered include

  • A guide to patients taking part in research
  • Prion Surveillance in PID Patients
  • Research and the UKPID/ESID registries
  • Advances in haematopoietic stem cell transplantation
  • Genome sequencing projects in PID