Immunoglobulin therapy Archives

After several years of being on immunoglobulin infusions my consultant took me off them for a trial period and now refuses to put me back on them even though I’m never well and have constant chest infections and my lung capacity is poor. Is the reason my immunologist refuses to put me back on them due to cost? What should I do?

The decision not to put you back on immunoglobulin (IG) will not have been made solely by your consultant but your case will have been discussed by the entire clinical immunology team before a decision was reached. It would be worth talking further to your consultant to discuss other treatments options such as prophylactic antibiotics

After several years of being on immunoglobulin infusions my consultant took me off them for a trial period and now refuses to put me back on them even though I’m never well and have constant chest infections and my lung capacity is poor. Is the reason my immunologist refuses to put me back on them due to cost? What should I do?2023-04-06T07:00:59+00:00

Do you have information on travelling abroad with immunoglobulin?

Take a look at this website page which has travel tips and our 'Going on Holiday' leaflet for some travelling trips. Travelling abroad with Immunoglobulin should be fine but please check the customs website of the country you are travelling to make sure.

Do you have information on travelling abroad with immunoglobulin?2023-04-06T06:59:59+00:00

My son has an IgG and IgA deficiency with two weekly infusions of immunoglobulin via a Portocath. Up until recently he had his treatment on the paediatric ward in a single room which we were told was to reduce the chance of infection. He has now moved to adult services and is now having the treatment in the ambulatory ward. Is this safe?

Most patients with a PID who infuse in hospitals do so in open bays on a ward safely. Please do discuss your concerns with your immunology team. You may also want to explore alternative ways of having immunoglobulin therapy, such as subcutaneous delivery, as this could potentially lead to home therapy options.

My son has an IgG and IgA deficiency with two weekly infusions of immunoglobulin via a Portocath. Up until recently he had his treatment on the paediatric ward in a single room which we were told was to reduce the chance of infection. He has now moved to adult services and is now having the treatment in the ambulatory ward. Is this safe?2021-04-01T13:37:03+00:00

I’ve just started immunoglobulin therapy and was extremely tired the day after my infusion, is this normal?

It is normal for someone to feel tiredness after an infusion, especially if you are newly diagnosed. This feeling of tiredness should stop once your immunoglobulin levels are stable and you have been receiving treatment for a while.

I’ve just started immunoglobulin therapy and was extremely tired the day after my infusion, is this normal?2023-04-06T07:56:29+00:00

Immunoglobulin therapy

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