Affiliations and links

Immunodeficiency UK is the national UK representative member of the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and a member of the following organisations:

Benefits and Works – Guides you can trust

Genetic Alliance UK

Rare Disease UK

Specialised Healthcare Alliance

Prescription Charges Coalition

Northern Ireland Rare Disease Partnership (NIRDP)

Irish Platform for Patients’ Organisations, Science and Industry (IPPOSI)


The FSI | Leading provider of small charity training 

Membership of panels and committees

Immunodeficiency UK has representation on:

Immunodeficiency UK is a National Institute for Health Research (NIHR) non-commercial Partner. This means the studies that we fund may be eligible to access NIHR Clinical Research Network (CRN) support.

To support patient advocacy and care we have regular involvement with consultations set up by NICE, NHS England and other health agencies