Immunodeficiency UK is the national UK representative member of the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and a member of the following organisations:
Benefits and Works – Guides you can trust
Genetic Alliance UK
Rare Disease UK
Specialised Healthcare Alliance
Prescription Charges Coalition
Northern Ireland Rare Disease Partnership (NIRDP)
Irish Platform for Patients’ Organisations, Science and Industry (IPPOSI)
NCVO | NCVO
The FSI | Leading provider of small charity training
Membership of panels and committees
Immunodeficiency UK has representation on:
Immunodeficiency UK is a National Institute for Health Research (NIHR) non-commercial Partner. This means the studies that we fund may be eligible to access NIHR Clinical Research Network (CRN) support.
To support patient advocacy and care we have regular involvement with consultations set up by NICE, NHS England and other health agencies.