Need to talk?
It’s important you talk to someone you can trust if you’re feeling worried about something or feeling low about having an immunodeficiency or any other issue affecting you.
This can help you make sense of how you’re feeling and often leads to finding solutions or ways forward. Keeping your concerns to yourself may lead you to feel overwhelmed.
If you, or your family, are concerned about your mood being low, it’s important to get help as soon as you can, by visiting your GP or speaking to your healthcare team.
Try to remember you’re not alone, and there are plenty of people who want to help you.
Here are details of organisation that specifically help young people:
The Mix
The Mix is a free, confidential and multi-issue helpline support service for young people. It covers mental health, relationships, work and study and money issues.
0808 808 4994
YoungMinds
Provides support, advice and resources for young people. They have a free 24/7 crisis messenger service. Text ‘YM’ to 85258
https://www.youngminds.org.uk/
Child Line
Childline helps anyone under 19 in the UK with any issue they’re going through. Whether it’s something big or small, they have trained counsellors to give support. It is free, confidential and available 24 hours a day.
0800 1111
Papyrus UK Suicide Prevention
This charity is dedicated to the prevention of suicide and the promotion of positive mental health and emotional wellbeing in young people.
Call: 0800 068 41 41
Text: 07860 039967
Email: pat@papyrus-uk.org
Changing Faces
https://www.changingfaces.org.uk/
Changing Faces supports people who have any condition that affects their appearance (e.g. acne, eczema) anywhere in the UK. They can provide confidential emotional support, advice and information.
0345 450 0275 or 0207 7391 927
The Rainbow Trust
Rainbow Trust supports families who have a child aged 0 – 18 years of age with a life threatening illness and need bespoke support.
01372 363438
This website has a fuller list of support organisations for people aged 11-18 year olds: Useful contacts – 11-18 year old’s mental health – Mind
Updated February 2024