This all depends on the type of SCID and how tissue type compatible the donor cells are. For some children with SCID with a perfect tissue match from their brother or sister conditioning using chemotherapy may not be necessary at all if the transplant is undertaken early enough in life.
Sometimes a BMT doesn’t “take” because the graft is rejected. In that situation, it may be possible to consider doing another transplant. However, this is dependent on whether the original donor is suitable or whether another suitable donor can be found. The medical condition of the patient considered for subsequent transplant has to be good
Yes. For example, if you were to give £12 every month, only £9.60 would come out of your salary – but we'd receive £12. Or if you were in the higher rate tax bracket(40%) then only £7.20 would be taken from your salary.
Payment stops when you leave your job, but you can set it up in your new role by contacting their payroll department.
Yes, just get in touch with your employers payroll department to stop further payments.
There’s no minimum or maximum amount, but we suggest donating at least £5 per month.
If you get paid via Pay as you earn (PAYE) you can donate via payroll giving. If your employer already has a payroll giving scheme, speak to them about setting up a monthly donation. If your employer doesn’t support payroll giving, speak to them about setting up a scheme with one of these approved payroll giving
Both the meningitis and septicaemia vaccines are killed vaccines so PID patients should definitely have the vaccination. PID patients may not make the most effective response to the vaccine but it’s better to have some protection.
Prescription charges only apply in England. If you are on any type of benefit you may qualify for help. Find out more at http://www.piduk.org/livingwithpids/affectedadultswithpids/prescriptionchargesandpids
In some UK centres and parts of Europe patients with secondary antibody deficiency only have their IgG over the higher risk winter months and then have 6 months off. The choice to do this must be based on full knowledge of the patient history.
IMPORTANT NOTE: The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor
if you or your child has any immunodeficiency symptoms or concerns. © 2025 Immunodeficiency UK. All rights reserved | Registered charity number 1193166.
